What is a children’s hospice?
A children’s hospice us a place, which one doesn’t look for but would like to find when one needs it. Seriously ill children, adolescents and young adults live here. They all have a diagnosis of a “life-limiting illness”. These young people frequently do not reach adulthood. In Germany well over 40,000 children, adolescents and young adults live with live-limiting diseases. Approximately 5,000 young people die every year.
Heartbreak and worries, sorrow and pain, helplessness and exhaustion. These are the stressful symptoms of seriously ill young people and their relatives. Often over many years. In order to make this time as dignified as possible, those affected need help through comfort, support and stress relief.
Seriously ill children – this is still a taboo subject but it makes it even more important to explain it and increase public awareness – for more support.
Bundesverband Kinderhospiz e.V. with its registered office in Berlin is the association of children’s hospice organisations in Germany, focussing on the dignity of children, adolescents and young adults with life-limiting diseases and their relatives. It works independently, along non-party lines and is interdenominational. It is a charity and works for children’s hospices throughout Germany. As an association it considers itself to be the driver of joint, hard work for children’s hospices in Germany. It works transparently and with focus.
The Federal association is open to new initiatives and provides support in the form of specialist advice to build and develop children’s hospices.